86/365 – Call me clumsy 

I’ve been on the clumsy spectrum since childhood – my parents’ carpet was frequently covered in the juice that I’d absent mindedly spill and I’ve had more broken bones than most families collectively (to the point that my parents were probed about child abuse because I went to the Sick Kids hospital with broken wrists and arms so regularly).

As a student and journalist in my early 20s, my absent mindedness continued (my mind was on higher things, dontcha know) and so did my clumsiness with lots of coffee spills all over my notepads and desk. Now that I’m grounded in the real world, and no longer own a car covered in spilled soup, I thought it was a thing of the past. I was sure I had conquered the inner clutz. No such luck.

Recently I’ve been dropping things like they’re hot (some times they are and it can hurt). At Tuesday’s training session, I managed to cover my group’s table and some of our worksheets in coffee. On several occasions recently my Oyster card has teetered on the edge of the tube platform after it has slipped through my fingers and I’ve started wearing my backpack to work for the water bottle holder as the slippery blights kept falling from my hands.

I’ve decided that it must be due to a reduction in grip strength or my hand muscles getting easier fatigued. Either way, I don’t like it. It kills my pretence of sophistication and I am wondering if it’s getting worse because I’m stepping down the steroids (currently on 8mg a day). Today’s picture was taken on my lunch time run when I managed to catch myself from tripping down the stairs on Waterloo Bridge.

Perhaps I’ve just had a bad run of luck, but I would be interested to hear if anyone else with MG has had a similar increase in clumsy incidents?

5 thoughts on “86/365 – Call me clumsy ”

  1. I’ve just read your blog – I was writing something similar when I stopped to check emails and noticed I hadn’t read this… I’m suffering similarly, but I think mine is catch up from the weekends business. My fingers can’t grasp and I feel like I have rsa in my hands. Unpleasant but not overly painful. But I agree with you – totally infuriating!

    1. Thanks for responding Amy – it’s always hard to know with these things how much of it is to do with the MG/meds but it sounds like you are having a similar experience. Have you had it before or is it new?

      1. I get it when I have a flare up (normally to do with doing too much, as you mentioned I your blog the other day about your day in London). My hands don’t seem to be able to grip/ make a fist and fingers/ wrists feel weak (such as trying to open a jar lid or pull a ring pull). It’s not painful, but clumsy is definitely the way it leaves me feeling. It’s also likely today will be the day I smash a plate or glass because my hands will decide they’ve finished being used before my brain tells them to release (I hope that makes sense – else I’ll be sounding like a crazy person). I knew it was coming on last night when I was trying to empty the slow cooker contents into a smaller container and ended up wearing part of the contents haha! Does that sound familiar? I’ve always associated it with mg rather than meds, but then I’m only on pyridostigmine so not sure how other meds behave.

  2. Hi Laurna

    My name is John and I was diagnosed with Myasthenia Gravis one year and five months ago when I went to the eye specialist because my doctor was concerned about my vision! The lovely eye consultant at East Grinstead said with the double vision and that your voice has gone I think you have a rare illness and sent me to A&E with a letter suggesting that I might have Myasthenia? They kept me in Haywards Heath hospital neurologist ward for a month doing tests and confirmed that I had indeed got Myasthenia, why me I thought, I was 60 and an older dad with two young boys aged 8 and 6.

    Well I was on the normal high dose of steroids and a multitude of other drugs, but was released to go home for Christmas!

    My Consultant is a German Called Dr. Kock and I must say he has been fantastic as was all of the staff on the neurologist ward at Haywards Heath. I now think I was extremely lucky to have been in West Sussex.

    Over the last year Dr. Kock has reduced my medication slowly but surely until now I am well off the steroids and have started to loose the weight again.

    I am now on 200 mg of Azathioprine at 8am and 60 mm of Pyridostigmine with 15 mg of Propantheline at 14:00 and 18:00 when I get most tired. Yes I can feel tired at other times, what with two young lads, but hay ho!…

    I have aching legs in the morning with a bad back, which is ok once I warm up! And do I drop things-yes I do, all the time. I used to get very annoyed by my clumsiness but now I just try and laugh it off! If it’s something of value I ask the boys or my lovely wife to pick it up and move it.

    Why did this happen to me I ask and who knows. I was super fit when I was young and served with the Royal Marines and later in life I still used to keep fit and ride fast bikes. Now I am lucky to be able to do a 10 mile cycle ride with the boys. But one mustn’t moan. I have not yet choked to death and can drive once again and the year without the driving licence was murder?

    I very much enjoy reading your daily posts, but hay dropping things is a small price. You do great, what with your training, work and a few drinks with that get up and do attitude your doing great!

    Very best regards

    John

    Sent from my iPad

    >

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