105/365 -Raising funds for myasthenia 

Whether you’re a fan, are sceptical or loathe it, fundraising plays a vital role in keeping charities that support people with myasthenia going. It costs Myaware £3,000 a day to provide its services in research, support and awareness. That’s £21,000 a week, £84,000 a month and more than £1m a year. If you’ve ever been supported by a charity like Myaware you have done so because an organisation has donated money, one of the staff have fought hard for a grant or someone has worked hard to raise funds.

It was this reflection that made me decide to do some fundraising for the charity last year. I thought about the way the lovely Maria had provided help and support for me when I first was diagnosed – without her I probably would still be in the process of getting a consultant. The way she’d invited me along to meetings and spoke to when I nervously arrived. I had wanted to do a triathlon but on the aziathioprine was advised not to swim in open water. So I decided to do a staggered triathlon – a 120km walk, a 13 mile run and a 60m cycle. In the end I raised about £1,100 thanks to the effort and generous support of friends and family. It felt like a lot of work but I was delighted to be able to contribute those funds to a charity that had supported me.

I’ve decided to take a break from fundraising this year as I raised funds for Aberlour in the Kilt Walk the previous year and don’t want to put financial pressure on my loved ones. However if you’re thinking about taking part in a sporting event or are looking for a challenge, physical or otherwise, there are lots of ways you can raise funds for Myaware available here.

My mum is going to do some ‘can shaking’ for Myaware in the next few weeks with the Midlothian branch – that’s something you could do with one of the local branches or, if you organise it with the charity via info@myaware.org, with a club or social group.

If non of these take your fancy you could do what I did and create your own charity challenge or event. You could do something fun and relatively easy like doing Up at the 02 arena (just don’t do what I did and try to do a ninja kick for a photo at the top – ended up having to slide down part of the way on my bum as I hurt my knee). The world is your oyster and every penny will be gratefully received. Not just that, I can guarantee it’ll make you feel great to contribute to an organisation that offers so much to people who don’t often have their condition acknowledged. 

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