So in my last post about the world of myasthenia being small I wrote about a workmate who’s son has congenital MG. Despite the fact that there are only 10,000-12,000 people in the UK and Ireland with the condition, I found out this weekend that someone I knew when I was younger also has myasthenia. She is around the same age but has had it for a lot longer than me and has not coped well with it. There must have been something in the water.
I don’t think it is fair to this person to say anymore, but it has made me realise once again how lucky I am to have developed MG after I had found my place in the world.
I wonder if many people with myasthenia know others from out with the Myaware community, whether from childhood, work or hobbies, who have the condition? Is this strange?
365 days of myasthenia 