133/365 – Blood test blues

As I’ve increased the amount of immunosuppressant I’m on, my consultant has asked me to increase how regular I’m getting blood tests. So now I’m going to the hospital every 4-6 weeks to be ‘stabbed’ as one doctor once said as she was doing it. 

Yesterday I thought I would sneak up early, before the crowds, to make sure it was quick and painless (or as painless as could be expected). Big mistake – when I arrived the number being called was 75 and I was number 16. Meaning there were 41 people to get tested before me. Swithering briefly whether I should stay or come back again later, I decided to stick it out as it’s about a 25 minute cycle there and it was unlikely I would have time before I head off on holiday next week. 

An hour passed before I was called up – yet this is the ‘best’ option according to my doctors. I’m unlikely to hear anything until Monday now but hopefully it’ll be all clear. 

With the potential side effects, I get that it’s important to have regular tests and that I’m incredibly lucky to live in a country where we have free health care. Still I must say I’m looking forward to being able to go back two monthly ones. 

2 thoughts on “133/365 – Blood test blues”

  1. I am 78 years old. I was diagnosed 17 months ago with Ocular MG. I have only just come to terms with this condition. Your blog has been so helpful for me. Thank you so much for all your help. Blood tests have not been asked of me by my consultant. My next appointment is December, should I ask my GP who has taken over my MG care? Think I will ask him. Once again very many thanks for your blog my daughter reads it too and agrees what a great blog it is.

    1. Hi Pamela, thanks for your comment – I’m glad you are finding the blog useful. In terms of blood tests, I am getting them taken because I’m on aziathioprine and it can be harsh on your liver according to my consultant. I’m no medical expert so probably best to talk it through with your doctor. How have you found the condition so far? Have you been along to any support groups? I hope you are keeping well and feeling strong. Take care for now.

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