As I mentioned in my previous blog, last night I attended the Young Myaware group drinks. It takes courage to come along to these get togethers and it is always lovely to meet others with myasthenia.
At the events I have attended over the last two years (nearly) there has been a diverse group of people who live all over the south east and who all have a story or two to tell. These events are great for raising questions, feeling part of a community and sharing tips about coping. But also it’s good to laugh and there’s never a shortage of that.
Normally these events make me feel like I’ve just begun my journey with myasthenia, but last night there were two new people who came along for their first meeting. It was lovely to be there to see them reaching out for support. If I could give one piece of advice to everyone with myasthenia it would be reach out. Being able to talk to someone who understands is a rare gift – whether you have a strong support network or not, there is a ready made one with this group.
If you don’t live in or near London, fear not; the Myaware young person’s is going on tour around the UK at the end of 2015/start of 2016. More information on this will be released as locations are confirmed.