186/365 – 7 days of myasthenia update

First of all, thank you to all those who responded to my idea of carrying on the blog next year.  

As mentioned in my 183rd blog, I’ve been thinking about turning this website into a place where anyone with myasthenia can write about what life is like for seven days. I’m keen to capture how MG impacts people differently and to create a safe space for the myasthenia community to share anything. 

I’ve also been thinking how great it would be to get family members, partners, children of, and friends of people with myasthenia to write what it can be like from their perspective. As discussed previously, there can be pressures and stresses on the loved ones of people with MG that may never be aired. How great would it be if this blog could also be a space for loved ones to share coping strategies, to trade stories, to feel like what they’ve got to say will be heard without judgement and to feel part of a community too.

Again, if I go ahead with this idea, these blogs can be anonymous. If you think you know someone who would be interested in contributing, or if you have a loved one who has MG and are interested in writing, please leave a comment. 

Warning – the warm and fuzzy feelings you get from being open, being heard and being understood can be addictive.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s