Next month, August, there’s a chance for families with someone affected by myasthenia to spend time together and make new supportive connections. Held in London’s Alexandra Park, in the north of the city, the day will offer fantastic views, hopefully sunshine and guaranteed good company (Elaine’s going).
The idea for the picnic came about at the last Myaware Young person’s meetup group. Discussing one of the member’s family situation, the group reflected that it might be useful to bring our loved ones together at an event. Having MG can puts a lot of strain on families/partners etc and, as it’s a rare disease, without charities it’s unlikely you’ll meet someone else in the same position. This is a great opportunity to connect with other people in a similar situation and who have been through the same challenges you have faced.
The plan, at present, is to meet at on Saturday 22nd August at Alexandra Palace at 1pm cafe bar before moving onto the park for the picnic. I’ll update the blog if this changes. If you’re interested in coming along, either join the Myaware Facebook group or email email@example.com.