196/365 – For better or worse

Saturday was my first wedding this year and one of my favourite days of 2015 so far. Considering her key role in the party flat at university, and her love of bringing people together, I had no doubt my good friend Anna would ensure it was a day and night to remember. While running to catch our bus back to Edinburgh laughing, after hours spent ceilidhing and catching up, I promised to try to capture the same joy on my own wedding day. 

Of course there is another side to weddings for people with myasthenia. Up until writing this blog, I mistakenly thought this was the first wedding since being diagnosed with myasthenia, but then I remembered just a month after getting my diagnosis I went to a family friend’s big day. I had blocked it out because it wasn’t a particularly happy occasion for me. Below I am pictured as I spent the majority of the day – in sunglasses. Despite being surrounded by family, I spent the day in hiding. 

While this weekend’s wedding was easier, as I’m further into my MG journey, I still spent some of the day in my ‘Blues Brother’ glasses. I took an extra steroid on the morning of the wedding to try to maximise my strength and, I’m not ashamed to say, for vanity’s sake. I hoped it would lift my eyelid enough to stop me feeling self conscious. My instinct was still to put my glasses on for the more important photos to make sure ‘droopy eye’ didn’t ruin them, but I tried to challenge this way of thinking. 

Either way, I spent a lot less time thinking about it at this wedding and a lot more time enjoying myself. That was testament to the great friends made at uni, to the positive energy surrounding the occasion and I think to the slow acceptance of my condition. 

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