You may remember that I wrote about a vaccine that is being trialled in Belgium a few weeks ago, myasterix. This was high up on the list of questions for my consultant earlier in the week. He hadn’t heard about it but said he would do some research before my next appointment.
When discussing it, he said that vaccines for auto immune conditions haven’t been particularly successful and, while looking at the website, the fact that it has been successful on dogs and rats doesn’t mean it will work on humans. I assume his scepticism is an attempt to stop me getting my hopes up, but I’ll keep an eye on the myasterix website anyway.
When describing the way I’ve been feeling since my last appointment, I mentioned the possibility of trying overnight mestinon – which has been recommended by a few of you. Unfortunately, this was knocked back.
Apparently, he was unsure whether we are able to get it in the UK, said I didn’t need it and that there is a slight risk of overdosing with it. When pushed for more information on the last point, he changed his mind saying it’s pretty safe.
I know that it is available, having spoken to at least one person who has had it prescribed, but right now I’m not sure that I do need it so didn’t push any further. All in all, a bit frustrating.