After 10 hours sleep last night, today felt right for stepping down the steroids. I’ve been on 2mgs for around 2 months now but I’m determined, if my body wills it, to get down to 0mg before Christmas.
I started stepping down the steroids at the end of February and have steadily reduced from 12mg a day down to 2mg. I really struggled from 3mg to 2mg with fatigue, heavy limbs and a constant battle to get a clear head. It took two tries but the second time I found it a lot easier to push through the difficult first few days.
I’m hoping this time I’ll be able to do it in one try but it will depend on how my body responds.
365 days of myasthenia 