304/365 – Coping with myasthenia in an emergency

So I’ve been thinking about for a while now about what happens to people with myasthenia, and other conditions, in a war zone for a while now. That’s mostly because of the refugee situation in Europe – there must be people with MG who have taken the brave decision of trying to reach Europe. A friend of mine who has volunteered at an African refugee camp said the first thing that the majority of people need on arrival is medical care. The thoughts have been sparked again today due to the terrorist attacks happening around the globe – we are already living in a time of war.

While I’m comfortable with most parts of having this auto-immune condition, I do worry about what would happen if there was a war like in Syria in our country. Watching this video about what it would be like for a child in the UK really gets the message across of how upside down a person’s life is turned during war and I wonder what would happen to those dependant on medications and medical treatment to keep them well. I worry that the wording in this picture may be reflected in the treatment when it comes to prioritising health care in a war zone – ‘you’re looking well’ so you must be.

While there is the option of not thinking about it as hopefully it will never happen, on week’s like this I find it difficult not to. It would be really interesting to hear of any accounts of people living through war in their home country with MG or similar conditions. It may well be that their treatment continued uninterrupted but the prospect of being in such an unstable environment terrifies me.  

One thought on “304/365 – Coping with myasthenia in an emergency”

  1. I’m pretty new to MG but I’ve been dependent on insulin for the past 15 years as a type 1 diabetic and I try not to think about major crises like wars. There are stories of diabetics who survived horrible situations like WW2 and there have been some recent refugees who died of diabetes while trying to flee. I try to keep enough supplies on hand that I would have enough to get me by for a few weeks but beyond that I have no expectations. But worrying about it does no good so I don’t think about it. Instead I prepare for more immediate emergencies – I’ve taught my daughter to be able to say the names of my diseases since she began to talk and I’ve taught her how to make an emergency phone call should I ever lose the ability to speak, breathe, or be unconscious. I feel relatively prepared for the more likely emergencies and that’s all I’m going focus on. It easy to envy all the healthy people who don’t give these sorts of things a second thought but I’m grateful I have the resources available to me that I do.

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