Tag Archives: food

127/365 – Time to detox

I’ve had a few very busy weeks in and out of work. With a good friend of mine down to stay for a week, a trip up to Edinburgh, starting a new volunteering adventure and working long hours to prepare for the election/new administration, I’ve been feeling worn out. Due to this lack of time to myself and lack of energy, I’ve been eating poorly. My gluten and dairy free diet has been put on hold while I’ve just been grabbing whatever is most convenient. I’ve been living on ready meals, packet sushi and sugar fixes. As a result, my body has felt poisoned and I’ve noticed a difference in my mood, my energy levels, my attention span and my performance when I’ve been training. 

This weekend I’ve decided to cut back on the rubbish I’ve been eating and try to get back to the health kick I was on just a month ago. Even if it doesn’t last right through next week, when work gets mad with the new administration, I’ll feel better for giving my body the nourishment it needs.


53/365 – Struggling with the new diet

As it’s been 15 days since my diet update, it’s time to admit that I’ve been struggling with the new gluten free and dairy free lifestyle. 

With work picking up and my evenings and weekends filled with exercising and catching up with friends and family, it’s been really tough to maintain. 

One of the easiest ways to socialise in this cold weather is to go out for dinner. In the last fortnight I’ve eaten out more times than I had in the rest of January and February put together (a whopping six times). This is due to having visitors (which I love) and my London friends suddenly feeling sociable again after the January blues/skints. In my experience so far, restaurants are generally terrible at providing GF/DF options – the one exception to this is my new favourite London Tapas place, The Port House. However, I’ve not been seeking out the healthy options either – on Monday night I went for a cheese burger in one of our local pubs. Not exactly the closest option to GF/DF.

Alongside eating out, with my days becoming busy again, finding time to shop in health food stores for specialist products has become more difficult. Finding time to prepare dinners for the next day and to research new recipes has also become a struggle.

I think this is a key point – rather than expecting these things to happen magically, I’m going to have to be proactive, and plan time in my weekly schedule, if I want to continue with the GF/DF.  

I’ve also found with tiredness setting in, I tend to get more tempted for sugary gluten and dairy treats during the late afternoon slump and in the late evening. Today I plan to spread my ample snacks out better so I have something sweet, probably my dairy free dark chocolate, left come 3.30pm when the cravings start. 

So how am I feeling about the slip?

I’m trying to be kind to myself as I’m not even a month into the new job. Thankfully I’ve not gone off the rails completely and, while the slips have been more regular of late, I’m still predominantly eating GF/DF. 

Now that I’ve acknowledged the struggles, hopefully with better planning, less food related socialising and a bit of willpower I’ll be able to continue with the experiment to see how it affects the myasthenia gravis. At this point, I don’t think it’s fair to say.

52/365 – Cooking with myasthenia gravis

While I have been lucky so far that my limbs haven’t been affected by myasthenia gravis, other than occasional heaviness and tingling, it may not always be this way. MG changes over time and when your arms or legs are affected I’m told everyday tasks can become very difficult. This ties into the spoonie theory post from yesterday. I’ve heard stories of people having to crawl or slide down stairs and, even worse for me, where lifting kitchen utensils becomes practically impossible. 

 It’s not that I’m going to be entering Masterchef any time soon, but cooking is both therapeutic and rewarding for me. I look forward to making dinner after a long day at work – almost as much as I look forward to eating the food I’ve cooked. I love having people over for a home cooked meal, taking my time trying new recipes at the weekend or putting together a brunch spread to enjoy over a few hours. I love food and, by association, I enjoy cooking. 

 So how would I cope if my arms became weaker? It falls into the you can’t worry about every eventuality category for me. At present, the worst I get is after a hard workout I may struggle to open jars or cans. If it did get worse, there is guidance for how to stop your arms getting too fatigued while cooking online.

The best tip I’ve read so far is cook in batches when you’re feeling strong.

The other side of this is MG can cause difficultly chewing and swallowing, which impacts what you cook and eat. 

Helpfully Myaware is putting together a recipe book. This will contain dishes that can be made without causing fatigue – both in cooking and eating. They are being provided by people with myasthenia who have tried and tested them and if you have a recipe you’d like to submit, you can email Sarah.hindley@myaware.org.

I leave you with a photo of my dinner this evening (I told you Masterchef isn’t going to be calling me anytime soon) I’ve not long finished making tonight’s meal – as my friend commented recently we are often on Spanish time here as we don’t get home until late and then start to make dinner.