Tag Archives: guidance

161/365 РPost 365 days of myasthenia 

As part of the feedback I’ve been collecting, I had a most welcome comment over night. Alongside other warm words, the kind respondent said they hoped I would continue blogging after the year is up. I’m sure that’s not how you all feel – by blog 10 I was sick of the sound of my own ‘voice’. What to do with the blog content when the 365 days are over is something I have given some thought. Continuing the blog after the year, on the other hand, was not something I had really thought about. 

I’m almost halfway through the 365 days now, with just over two weeks of June left. Time is flying because I’m having fun (and keeping busy so I’ve got plenty to write about). On some days, finding the time or head space to write my post can be a real challenge, but most days I look forward to it. I’m more aware of what’s going on around me and how I’m feeling because I’m documenting it. At the end of this year, the endurance test will be worthwhile because I’ll have captured honestly the ups and downs of living with this rare condition. 

I can’t say at this point whether I will keep it up after the year is over, but there are still 204 entries to enjoy and, after that, I plan to use what I’ve written as a resource for people living with MG.