Tag Archives: hospital

356/365 – Precious patient 

Curled up on the hospital bed with the ECG pads still all over my stomach and chest, I woke up with a fright when the doctor finally came to speak to me. It was 7am on Saturday morning by now and I could tell by looking at him that he was jealous of my light sleep. But  that didn’t stop him from giving me a full check up: testing my reflexes, my pulse, blood pressure and other tests I don’t understand. He stopped short at blood tests – much to Elaine’s relief – but told me I’d done the right thing coming into hospital as I am a precious patient, due to the MG, and the symptoms I had were to be treated with caution.

I had been stupid on Friday and that’s how I ended up in hospital in the middle of the night. Straight after two days in a row of 1 and a half hour hot yoga classes, I mindlessly had a few glasses of bubbly. Not thinking about the strain my body had already been under, I pushed it too far with adding alcohol on top and woke up with palpitations at 3.30am. When they didn’t shift after about half an hour, I thought it would be best to call NHS 111 and they told me to get down to our nearest hospital’s A&E. Poor Elaine, who had been keeping me calm throughout, drove on the icy, dark roads and stayed with me. 

I know – I am an idiot and will not be doing it again. I’m annoyed at myself as I was feeling great for doing the yoga – as you can see in the picture above its helped me feel well and strong although 2 days in a row was my first mistake. 

But it was great to have a general emergency doctor recognise that the breathlessness I was having could have been related to the MG and a crisis. Once again I’m reminded that everything I do now must be more considerate of my health, but also that if/when something does happen, I need to tackle it head on and trust that I’ll be in safe hands. 

27/365 – Last day off

Tomorrow I begin my new career – the delay is over and I can’t wait to get started. No more daytime exploration of places like Somerset House (pictured above).

I’ve held off discussing my new role until now as I was waiting for security clearance. From tomorrow, I will be a civil servant working for the government department dearest to my heart, Department for Communities and Local Government (DCLG).

DCLG covers many of the issues I’m passionate about including housing and homelessness. I’ll be leading the digital content team for the department at a very interesting time – with less than 100 days until the general election.

Before starting my training tomorrow, there are a few important tasks to take care of today.

As it’s my last day of free time, I’ve just been to get my third blood tests in two weeks – having MG makes you feel like a pin cushion at times. This set is for my GP to see whether the chest infection has cleared or whether I need more antibiotics. After taking it relatively easy for nearly two weeks, I hope that I can get back to my normal routine. As much as I’ve enjoyed walking and resting, I’m yearning to put my running shoes on and pound the pavements again.

As you can see below – getting these tests done is never quick. Receiving a ticket with number 23 when the board says 9 is enough to make anyone’s heart sink.


As part of the 10,000 steps challenge, I walked to the hospital in rain and hail to get the tests done. However, I still have around 5,000 steps to do today so it looks like I’ll be pounding the pavements slowly home.

The rest of my day will be spent writing up case studies for Rare Disease Day (more about that over the next few days), preparing for tomorrow and resting up. A big challenge for me over the next few weeks will be to continue the daily blogs and the healthy diet. I’m feeling great for doing both and will try my best to keep them going – if you feel I’m slacking please feel free to point it out.

Going back to work five days a week for the first time since September is both exciting and scary, but I’m ready to give it my best shot. First things first though – it’s time to enjoy the stroll home now that the clouds have parted.