So today I’m reminded of how much better a long lie and a walk by the sea can make me feel. After another busy week, with an early morning yesterday to ensure I could fit in all I needed to before finishing for Easter, I travelled to Dublin late last night unable to feel excited about it because I was too drained.
However, with no alarms set, I slept nine hours and awoke feeling brand new. After finishing my epic blog entry about how people with myasthenia gravis can learn from religion, we had some breakfast with Elaine’s parents before picking up her brother and his girlfriend. We then went for a walk at the Great South Wall pier. I had heard much about the place as it’s one of Elaine’s favourite spots in her hometown and, as we battled the wind to reach the lighthouse, looking back towards the two towers, out towards the mountains and over to Hollyhead it would be hard to deny the port’s charm.
Even better than the view was the fact that I felt I had the energy and then some to tackle the walk. Again, this was refreshing as I had run 8.5km the day before but the last 2km were a real struggle for my tired body.
I’m hoping another longer lie tomorrow will help deter any negative affect from the wine I’ve shared with Elaine’s family tonight. Either way, it’s been a lovely day and I feel like I’m well and truly on my holidays here.
Last night I awoke with the strangest sensation. I can’t be sure exactly what it was but after a lifetime of my mum using the word ‘stooning’ I now know what she means.
I woke up in the middle of the night with pain, except it wasn’t pain necessarily, in my middle toe on my right foot. As I discussed yesterday, I’ve had a full-on week of duathlon training so at first I thought it was my usual batch of middle of night cramp, as I wrote about here. I probably hadn’t drunk enough water to recover from the training so that was surely it, I thought. But as the sensation went on I realised I haven’t really had that kind of cramp in my toes before and I couldn’t be sure it even felt like cramp. It was a deeper sensation – like the bone itself was aching and vibrating.
I thought these weird aches and pains didn’t happen until later in life so I’m hoping this was a one- off snooze-time disturber. Needless to say, the broken sleep has left me feeling exhausted today with a very full work schedule ahead. Caffeine ahoy!
Tonight I’m having the rock and roll kind of evening that people with myasthenia are very familiar with – the tucked up in bed by 9pm kind. The hide away and hope you feel less drained tomorrow type.
Although I was meant to go to volunteering tonight, I listened to my body…it said you tired, go home. Sometimes I go a bit cave woman in my knackered state and I’m sorry but this blog probably isn’t going to be more articulate than you tired but you try write.
Anyway, I listened to the weary, simple, voice and went home. After using all of my reserve energy, or spoons if you follow the spoonie theory which I’ll come back to another time, to make dinner and shower, I’m now in bed with a hot Vitamin C drink.
I’ve been feeling full of energy over the last few days and this tiredness worries me. I’m scared that I’m coming down with one of the many bugs floating around my office after just starting to feel better from the previous chest infection. Currently, in the open plan space where I work, there is a chorus of coughs, sniffles and sneezes. So, along with the wall of tired, when I sneezed rather violently this evening, I put 2 and 2 together to make sick. Although my consultant tells me you’re not much more likely to pick up common colds when on immunosuppressants, I definitely feel there’s been a big increase of me picking them up since my thymectomy and upping the aziathioprine. I hope that this is a mild encounter or that I’ve just overdone it this week. Today felt very busy at work and I haven’t had a day of rest from exercise since last Thursday.
Anyway, enough what ifs and whinging. I feel like if there is an MG equivalent for Manflu right now, I have it. MGflu, Myflu, Myaflu…Anyway, on a more articulate day, I’ll write about ways to avoid picking up bugs on immunosuppressants. But for now, it’s definitely time to say goodnight.
This morning I knew from the moment I woke up that it was going to be a good day. My eyes didn’t reluctantly creak open, as they had for the rest of this week, my vision was perfectly clear on first glance at the world and my body felt like it needed to spring out of bed. The magical ingredient – eight hours sleep after a week of broken nights.
After yesterday’s 5.30am alarm, run to the tube station in the snow, due to bus strikes, full day of training, walk back to Nottingham city centre from the university and then walk home in the freezing cold, again due to bus strikes, I was feeling weak and shaky by the time I made it through my front door. After a quick catch up with Elaine, I fought the urge to stick on an episode of something or read a few pages and retreated to bed. I must have been passed out within 10 seconds of switching the lights off as I woke as I’d been in hibernation all winter this morning with no recollection of even saying goodnight.
The early night has made me focused, sociable and energetic today – I even managed my first session in my work’s gym at lunch with the toughest treadmill workout I’ve had since my operation in September.
So, using this as evidence, I’m going to try to not under or over sleep this weekend. It will be interesting to see how my body responds to it. For now though, happy Friday evening to you all!