When you have a condition like myasthenia, it can feel all consuming. There’s so much to think about that often you’re left with little room for anything else. It’s no wonder then that people with MG can be left feeling low and anxious.
I’ve found to have a good quality of life with MG, it’s important to remember what it is that makes me happy. When I feel like I don’t know what that is, I try something new. If that’s not ‘the thing’ then I try something else. Sometimes it can be difficult to motivate myself and that’s ok. Each time I do though, I’m always left feeling more positive about everything including the myasthenia.
Last night, I made time for a walk with the good company of my friend Kate down by the river – one of my favourite things to do in London – getting a bargain burrito and an episode of a TV series I’m enjoying, Peaky Blinders. The picture above is on the bank of the Thameside with some scupltures that are part of a festival being hosted there. All simple pleasures but effective in making me feel happy. Even if it’s just half an hour every couple of days to do things that make you happy, I find allowing myself that short amount of positive time makes a big difference to how able I feel to cope with the myasthenia.
Some other things that have the same impact on me: Going to the cinema, salsa dancing (and so many other things) with Elaine, any kind of catch up with any/all of my best friends, Gemma, Steph and Sarah, reading in bed on weekend mornings, having open conversations with anyone, the endless possibilities of a Friday night train up to Edinburgh, the feeling of infinite options during Friday night drinks, having a glass of wine while speaking politics with my parents, getting out into the middle of nowhere for a walk or cycle, exploring somewhere new, long baths, the first sip of a good cup of coffee….I could go on and on.
Even just writing out this list made me happy.